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Are you suffering from Caregiver Syndrome?

As rewarding as caregiving is, it also has a demerit leading to uncertainty in mood and emotions. The caregiver often faces physical and mental stress which lead to an impact on their own health.

3 min read · Updated 2023-05-01

Hand-drawn line illustration of an alert bell, a heart and pulse line and a brain for the guide "Caregiver Syndrome: Signs, Risks and What to Do"

Overview

It typically manifests in a person who neglects self because their entire focus is on the ill.

A few facts around the syndrome:

  • It impacts the mood of the caregiver, along with the long term health and wellness.
  • A person who is helping a person of cognitive decline suffers more from depression and mental health problems.

Effects on physical health include:

  • A decline in physical health.
  • A higher level of stress hormone and lower level of antibody.
  • People with conditions like heart disease, arthritis, diabetes etc.
  • Physical assistance leads to physical stress.
  • Increased risk of having heart ailments in women who spend more than 9 hours a week taking care of their spouses.
  • Bad eating habits.
  • Caregivers of 66+ age have a higher mortality rate in comparison to non-caregivers of the same age.
Hand-drawn line illustration of a bowl of food, an alert bell and a heart and pulse line, for the section "Effects on physical health include:" of Caregiver Syndrome: Signs, Risks and What to Do
Illustration: Effects on physical health include:

Symptoms of the syndrome:

  • Change in Appetite, weight or both.
  • Often feeling blue, irritable or helpless.
  • Withdrawing themselves from friends & family.
  • Changes in sleep patterns.
  • Reduced immunity.
  • A feeling of hurting yourself or the person you are caregiving.
  • Loss of interest in activities you use to enjoy earlier.
  • Physical & emotional exhaustion.

How to deal with this Syndrome?

Once you recognise that you are having signs of Caregiver syndrome, then the next step is to manage it. The best way is always to make your own health a priority to continue providing proper care to your loved one.

If you have the above-mentioned symptoms, take a break.

  • Contact local agencies, family or friends to help. You could reach out to professionals or organizations who provide healthcare at home.
  • While you unload yourself from the stress, do something that you enjoy or simply rest and recharge.
  • Try unloading yourself from the services that are readily available by outsourcing. Lower your other workload. Hire someone to do household chores for you.
  • If you are working somewhere, talk to your employer. There are several programs that a company can help you with under the family and medical leave act.
  • Focus on taking care of yourself, seek help from medical professionals when in need.
  • Make sure you are eating well, sleeping well and are regularly exercising.
  • This role emotionally drains a person. In that case, you should contact a therapist or talk to a family member or friend.

This stress is real, but there are always many ways to overcome it, be happy and at peace while looking after your loved ones.

Always find time for yourself and your own needs. Keeping yourself content is the key to avoid caregiver stress.

What to do next

1. Name it: exhaustion, irritability, poor sleep and feeling trapped are common in carers and not a failing. 2. Take one break a week, even a few hours, and a longer one when you can. 3. Share the load: divide tasks among family and hire a helper for chores or night shifts; see hiring a home attendant checklist. 4. Look after your own health: sleep, meals, medicines and check-ups. 5. Talk to someone: a friend, a support group or a counsellor. 6. Set limits: say no to some tasks and ask for help with others. 7. Plan for emergencies: if you fall ill, who takes over; see when the main carer falls ill.

Hand-drawn line illustration of a weekly pill organiser, an alert bell and a stethoscope, for the section "What to do next" of Caregiver Syndrome: Signs, Risks and What to Do
Illustration: What to do next

Warning signs that need help soon

Thoughts of harming yourself or the person you care for, feeling hopeless, losing interest in everything or using alcohol to cope need support at once. Talk to a doctor, a trusted person or a helpline (for example Tele-MANAS on 14416; check it is available in your state). Call 112 in an emergency.

Resources

See caregiver burnout signs and prevention and how a home attendant improves seniors' lives.

When to ask a professional

A doctor or counsellor can treat depression and anxiety, and a care service can provide respite.

Frequently asked questions

What is caregiver syndrome?

A state of physical and emotional exhaustion in people who care for someone else, often with stress, sleep loss and neglect of their own health.

Who is at risk?

Carers who work alone, care for someone with dementia, have their own health problems or lack support.

How can I get a break?

Ask relatives, hire an attendant for a few hours, use day care or arrange respite.

When should I seek professional help?

When low mood, anxiety, sleeplessness or thoughts of self-harm continue.

Sources and further reading

  • World Health Organization, Mental health of older adults fact sheet
  • Alzheimer's and Related Disorders Society of India, carer support resources
  • National Institute on Aging (US), caring for a person with Alzheimer's disease: caregiver health

Tags: Caregiver Syndrome #Factscaregiver burnoutcarer stressfamily caregivingmental healthConditions and devicesEmergency pendantSafety and alert devicesHealthy ageingElder care

Written by the Emoha editorial team. General information only.

This article is for general education and is not medical advice. Speak to your doctor before changing your exercise, diet or medicines.

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